I’m just not at a point where I can talk about it all. It’s just so much…
So much what does this cancer diagnosis mean to the rest of my life? to what extent will I let it define me? what do I want to do when I grow up? will it have something to do with cancer? should I change my major? what is the meaning of life, the universe, and everything? does it even matter? where are my shoes? how will we pay rent? did I take my pills this morning, or was that yesterday? who am I? who are you? will Lizzie and Mr. Darcy ever work things out?
In spite of all of that, I still have this…
the meaning of life, the universe, and everything is such a small thing compared to the beauty of my little girl in a swing. Pondering can wait; it’s time to play.
Those were the words I wrote without thinking: “a relearning how to dream after cancer blog.” I was shocked when I looked back and saw that I described my blog in this manner. Since writing the post, I’ve gone back and stared at those words countless times. To be honest, the words make me a little uncomfortable. Those hastily written words contain truths I didn’t realize were simmering under the surface.
Friday Night I found myself on stage at Courage Night as one of five women reading our work about surviving cancer. In the Q&A session, as I was describing how my blog had evolved, I recited this line from that blog post: “CoffeeJitters has been a single girl making her way in the world blog, a wedding blog, an infertility blog, a photography blog, a quitting my job and going back to school full time blog, a wow! I’m pregnant! blog, a mommy blog, a cancer blog, ….” except I swallowed the words “a relearning how to dream after cancer blog.”
No, in a room full of cancer survivors, women I love and trust, and who understand better than any one else, I could barely voice those words I had already published. I’m still not quite sure whether I said them out loud when I was at the mic.
I am currently taking Susannah Conway’s “Blogging from the Heart” class, which is proving to be more magical that I could have ever dreamed. This class is also bringing me face to face with that line – “a trying to relearn how to dream after cancer blog.” She is asking me to dig deep, and think about the purpose of my blog. It is easy to spot the focus on gratitude and appreciation of everyday magic, but this blogging practice is also challenging me to stretch.
Just as a physical injury can leave the body bound up in a tight little ball of muscle, the emotional trauma can have a similar impact on the spirit. Yoga and stretching and movement will little by little improve the flexibility and range of the body, but it’s sometimes painful and frightening. It is work that exists entirely outside of the comfort zone. I’ve reached the point where I understand what I have been intuitively trying to do, yet simultaneously resisting – to improve the flexibility and range of my imagination, of my ability to re-dream my future.
The process is slow and difficult, but looking back I can see how I have gradualy expanded the time frame of my dreams. Since diagnosis, I’ve had trouble imagining my life more than a few weeks or months ahead. Now my dreams stretch as far as five years out. Some day soon, I’ll be able to imagine myself at my daughter’s high school graduation.
Yesterday, my little girl turned three (yes, she shares a birthday with William Shatner). Today, I’m making calls trying to find a venue for her birthday party.
I’m that on top of things.
How important is it to throw a party anyway? I didn’t even think it was on her radar, but then a few weeks ago, as my daughter was explaining to a random cafe customer that she’s almost three and going to have a birthday party with a cake and presents and candles and new dress and and and [deep breath] and and and and – it occurred to me that I do have responsibilities in this department – and apparently, this year, she has expectations.
I was in the same boat last year with school, and fatigue, and bills, and everything-all-at-once. I even wrote about my frustration in deciding to postpone her birthday party till April last year, because I just couldn’t do it in March. And then the birthday party never happened. Too much everything. I can’t let that happen twice in a row.
And, I know this is a taboo topic but, I don’t know how many birthdays I will have with her. I can’t promise her I will always be here for her. I’m not planning on going anywhere, of course, but I got a big wake-up call with this cancer diagnosis. I need to cherish every moment I have with her. I can’t promise tomorrow, but I can give her today.
So what about school and everything else? I can’t count how many times a day I ask myself what the right thing to do is, and I don’t know the answer. In the moment, when she’s desperate for my attention, I want to say forget school. So what if that paper is due in 4 hours? When I sit back and look at the big picture, school is just so important. Hopefully it will help increase my earning ability, but more importantly, it’s an education. An education is so much more than just vocational school, and the more classes I take, the more I understand this. It’s critical. And I want my daughter to see that, come hell or high water (and I feel like I’ve seen both recently), I got an education. But attendance in school isn’t just about an education, either. We depend on my student loans to pay the rent. As much as it’s digging us deeper into debt, it’s also my way of helping to keep us housed and fed. Hopefully, someday it will pay off by leading to a decent paycheck.
But, I also want her to understand how important she is to me. When I hear her say phrases like “I’m trying to get this done,” “I have work to do,” and “In a minute,” my heart breaks a little bit because I know exactly where she’s getting them.
So I’m going to throw her a birthday party. I know it wont make up for all that time with my nose in a book, but it’s important. It’s important to her, and it’s important to me. It won’t happen till April, but this time, I’ll make sure it happens.
And the gift? One of our little traditions is right before bed she picks out what she wants to dream about; we can get quite fanciful, because amazing things can happen in dreams and anything is possible. More often than not, her choice of dreams involves dancing, and several times she has chosen to go dancing in an orange dress, and holding orange flowers. (Before this, I had no idea she even liked orange, but I think it’s becoming a favorite color). The other day we were at the store and she ran right up to an orange dress and said “I danced in this dress in my dream.” I think I need to find her an orange dress.
Also, is orange the big color this year? I seem to be seeing it everywhere.
We spent the evening walking down Bourbon Street in the French Quarter of New Orleans, The Big Easy. It’s Friday night, and I’m told much tamer than the partying a few nights earlier on Fat Tuesday.
My friends and I stand at the corner waiting for the light to change so we can cross the street, while revelers around us brazenly jaywalk – behavior that seems foreign to this group of girls from Seattle.
We stop for drinks at Howl At the Moon, and when they are delivered in 36 ounce plastic cups, the server explains that the 3 for one special means everyone is automatically upgraded to a triple, and the cups are plastic so we can take them out in the street.
We look outside: Everyone does carry their drinks with them in the street.
Don’t worry, we adjusted. It wasn’t long before we were jaywalking while carrying open containers. Talk about multitasking.
Beads hang from balconies, street lights, stop signs, trees, public art, and anything else that will sit still long enough to be draped with the twinkling strands in all colors of bling.
A sprinkling of rain and a sturdy breeze lends more sparkle and movement to a street that is already teeming with life; humans, pigeons, palm trees, flowers, moss, mules, dogs can all be seen in a single glance.
The next block we walk through is closed to traffic, and pedestrians fill the area between the buildings as they laugh, dance, and wander amongst the street performers and live music wafting from the insides of bars and restaurants, music so rich and textured it seems to hold a physical presence in the space as well.
Bright lights and dark corners, high contrast colors, bricks and stucco, trolleys and mule drawn carriages, trees and bling,
and ornate balconies populated with blow up dolls
conspire to create an environment that is, to me, both fun and foreign.
The second anniversary of my cancer diagnosis is quickly approaching. Of course it has me thinking. A lot. Not all the thoughts are happy thoughts, but that just comes with the territory.
But some of those thoughts are happy thoughts. Warm, fuzzy, happy thoughts. Like the girls I met because I have cancer.
These are women I would have been proud to count among my friends even before diagnosis, but I can’t imagine a scenario in which I would have met any of them outside of cancer.
This weekend a group of us traveled to New Orleans to a conference for young women with breast cancer. We learned about treatment protocols, late effects of treatment, nutrition, dealing with the impact of cancer treatment in the bedroom, and myriad other topics, and we got to spend time with other women whose lives have been similarly impacted.
Good times, good music, good food, good company…
I think the people with whom we surround ourselves have a huge influence on our happiness. Sure, we all have those people around whom we have to tiptoe and walk on eggshells, but we can dilute their influence with so many more amazing people, people who lift us up and love us for who we really are. I’m so blessed to have such amazing friends – that they understand what I’m going through with cancer because they’ve been there too just makes it that much better.
I’m a very lucky woman.
Of course I still worry about how many years I have left, but even more important than the number of trips you make around the sun is your traveling companions along the way.
In the cold, dark, fear of 3 a.m., when the cancer patient is most alone, I found ToddlerPlanet, a blog written by cancer fighting princess warrior, awesome mommy, and astrophysicist, Susan Niebur (also known as @whymommy).
Days after my diagnosis, before I learned to reign in my imagination and to view Dr.Google for what it is, I found Susan’s blog. I read for hours: post after post, page after page. It seemed she was speaking directly to me, addressing my personal concerns about life, death, love, cancer, and most important to me at that moment, the well being of my child. No sensationalism, just an honest look at life and parenting as impacted by cancer.
It would be difficult and frustrating, and at times, extremely painful, she seemed to say, but my days would still be full of love and joy, and I can still be an awesome mom, and my child can still be happy. I read those pages through tears; I was so relieved and hopeful. In the two years since then, we formed an internet friendship, tweeting and commenting on each other’s blog posts. The internet has made possible friendships between people who have never met.
Who will never meet.
Today I read her blog again through tears. Susan passed away today. She touched so many lives, her husband and little boys, her friends and family, the science community, the blogging community, the cancer and health advocacy community… and me, a girl at a computer Seattle, whose life was blessed by knowing her, even though we never met.
Is it just me, or does the moon seem to be a bit bigger and brighter tonight? I’m going to think of it as Susan’s moon.
Thank you, Susan, for the love and hope and strength you shared with all of us. Godspeed.
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