28 women finding ways to squeeze the day, every day, while living with cancer and it’s after effects.
Every year we converge on this little retreat center in the woods, on the edge of the canal.
Every year we laugh, we cry, we eat, drink, and dance,
We challenge each other, we hold each other up.
And even more importantly, we rest, and we are cared for.
Every year I come back home feeling two inches taller.
P.S. This year, I brought a spare camera and handed it over to the group, asking them to take pictures as well. I’m so glad I did. I came home with pictures that were complete surprises to me, and this year, I was so engaged in just being present that I hardly took any pictures at all. Thanks so much to my friends for picking up the slack.
P.P.S. The link in the first line will take you to the poem I read at the retreat. It resonated so profoundly with so many of us, and I received many requests for copies. (I’m not affiliated with the writer of the poem, but when you write stuff this good, it deserves a link.)
On April 15, 2013, terrorists detonated two bombs near the finish line of the Boston Marathon. Three people were killed, and many others were seriously wounded.
There have been several occasions in my life where chaos and violence shifted my perception of time, even if I was physically far from the event. Time slows down, speeds up, sometimes feels like its hiccuping or repeating itself as we hit refresh over and over and over again on the browser, or the same scenes are replayed by each of the major networks. But these aberrations in my sense of time, and in my sense of safety, never stopped the sun from going down at the end of the day – and never stopped the sun from rising the next morning.
A new day, with a new set of challenges, including the challenge of wrapping my head around yet another wave of violence. But that fresh start is also an opportunity for a fresh perspective, for evolving the way I look at the situation, and the world.
This morning, it was the sunrise that woke me up. Our bed is on the west side of our home, but for a brief minute the rising sun lasered it’s way through the balcony, through our living room, down the hall, and across my bed on the far side of our bedroom. The precision required to get the light across that space is remarkable, with maybe an inch of leeway. I know the light did not have a will of it’s own, but it sure felt like it was trying to get my attention.
The sun always rises
The sun always rises. But it’s not really rising, is it? The sun stays in the same place, and we revolve around it. It’s our changing perspective, in the physical sense, that brings the sun back into our little corner of the world each morning.
In the moments when the world seems dark and evil, it’s a change in my perspective that shifts my attention to the light.
As a child, I was taught that all people are evil at their core, but I no longer believe that is true. I believe most people don’t want to hurt anyone. In fact, I believe most people would go out of their way to avoid causing physical harm to another person. I believe most people want to be helpful. I believe most people want to do good. I believe that right this minute, people from all over the world are praying for Boston, and for the victims and their family members. I believe that when I small handful of people do something evil, a much larger group of ordinary people rise up and perform heroic tasks without even realizing it. They do it because they are there, and it’s the right thing to do. There’s no time to think about whether or not their good actions will be recognized.
Nature always seeks a balance
Yes, there are evil people in this world, and one way or another, they’ll get what’s coming to them. I want them stopped, to prevent another tragedy, but I refuse to invest any of my own limited life in thoughts of revenge. Karma will get them, even if no one else does. Nature always seeks a balance.
In the meantime, I choose to focus on the people healing, and the people doing good. These stories keep reminding me that despite the presence of evil, there is so much hope for the human race.
Patton Oswalt put it beautifully, and again I marvel at how our comedians can cut right to the heart of the matter – Modern day court jesters who speak the truth others are too fearful to say.
To the bad guys: “the good outnumber you, and we always will.” Patton Oswalt
I am happy. Right now. This minute while I’m typing these words.
It’s a little odd, I think, how seldom I recognize my own joy in the moment. I remember having been happy, but I seldom stop and think: “Wow. I’m really happy right now.” For me, the camera plays into the equation. I can really get lost in a moment with my camera, light, shadow, colors, movement, texture, and a certain twinkle in the eye. I can get lost in my happy little image world and have a perfectly lovely time. Hours, days, or even weeks later, as I’m editing the photos, I discover just how awesome the event really was.
Embracing Right Now
Life is full of beautiful moments, moments where the beauty is not in the image, but in the experience. Sometimes I let myself think that a moment must be documented to be real or precious. Not true. Building memories is important, but the initial experience is more important than each time it’s remembered.
Sometimes, I have to just put the camera down, and join the party myself. Even better – hand the camera over to someone else and let them capture me in the moment.
I still enjoy photography, but I have to remember not to let it replace interacting with my friends and family.
What about you? What can you do to embrace right now?
I was selected for this opportunity as a member of Clever Girls Collective, and the content and opinions expressed here are all my own.
There is a certain coziness to autumn. After the chaos of summer, it’s the time when we settle back into routine; we find a rhythm. It is the time of comfort food, of warm colors, and crisp breezes. It is the season of pumpkin pie.
Once upon a time, autumn was my favorite season, but all that changed a few years ago.
October – Breast Cancer Awareness month
In September of 2010, I looked forward to October with some enthusiasm. It was my first Breast Cancer Awareness month since my diagnosis 7 months earlier, and I didn’t know what to expect. I thought a month dedicated to people like me might be fun, and there were some amazing fundraising parties, but I was not prepared for the Pepto Bismol-colored tidal wave that engulfed me.
Now, when I think of fall, it’s with white knuckles. I’m either bracing for, enduring, or recovering from Breast Cancer Awareness month. In October, those of us with breast cancer don our pink boas, and work frantically to earn money for the legitimate organizations that are truly working for a cure, or helping people to live with cancer. Meanwhile, hucksters get rich off my misfortune by slapping a pink ribbon on a product, then bumping up the price by $5 to donate $1 to breast cancer charities. Everything is painted pink, even carcinogenic items. Well meaning friends pass around internet memes where they pretend to be pregnant, and this is supposed to somehow give hope, or something, to those women who lost their fertility to breast cancer. Everything is all about breast cancer awareness, as if breast cancer was some newly discovered affliction, and awareness could actually help you avoid it.
Yes, it’s true that there are things you can do to reduce your odds. But as of today, there is no guaranteed prevention, and there is no cure.
This morning, my YSC family lost another angel. This was the third loss for us in as many weeks. Rachel was interviewed for the same CNN Heroes story as me last year – the one where we honored Debbie Cantwell, and the Pink Daisy Project. In this clip, you can hear her voice, you can see the sparkle of her big smile, as eye catching as her orange bandanna.
We are warm blooded women, with hopes and dreams and responsibilities and heartaches. We are mothers, daughters, sisters, friends, lovers. We are individuals.
We are not mascots.
We are more than statistics.
Over the coming month we will be lumped together and presented to you as a barrage of numbers. 1 in 3 get cancer in their lifetime. 1 in 8 will get breast cancer. But I want you to see the faces behind the numbers. And I want you to pay attention to what these campaigns are really fighting for. Be wary of campaigns that are just for breast cancer awareness.
My friends are dying, and it’s not for lack of awareness.
I am aware of breast cancer, and I was for decades before I was diagnosed with locally advanced breast cancer.
You, no doubt, are very much aware of breast cancer as well.
Awareness will not prevent breast cancer, and while it can sometimes improve projected outcomes, early detection and treatment does not guarantee that the cancer will not return.
We don’t need more awareness. What we need is a cure.
For all the frustration that surrounds Breast Cancer Awareness Month, there are some wonderful organizations who are doing laudable work in the breast cancer field, and these organizations depend on the funds raised in October for the following year’s budget.
Pay attention to what a breast cancer charity is fighting for. Are they raising money for awareness, or a cure? If they’re working towards a cure, how much of their research money are they putting towards the stage of breast cancer that is actually deadly, metastatic breast cancer? There are also a number of much needed breast cancer charities that do not focus on research at all, but their services are critical to the lives and well-being of women living with breast cancer.
Just to cut through the crap a bit, I’m going to list a few organizations below that do an excellent job of serving the needs of women with breast cancer. This is by no means an exhaustive list.
The Young Survival Coalition: YSC helps young women live with cancer, to connect with others with similar experiences, and to not feel so alone. I credit YSC with helping me keep my sanity while going through treatment.
The Pink Daisy Project helps young women with breast cancer to deal with the practical aspects of life while they are going through treatment. This is the organization highlighted in the CNN clip above, and they help young women who can’t wait for a cure. PDP hired someone to come clean my home while I was going through chemo and to sick to clean it myself. They sent me gift cards to buy the necessities of life when I was counting change from the couch to buy diapers.
The National Breast Cancer Coalition is so serious about curing breast cancer, they set a deadline, 2020. Their approach is science oriented rather than political, and they are committed to this goal.
The Dr. Susan Love Research Foundation – this science oriented research organization is also working on some groundbreaking research towards the goal of ending breast cancer in our lifetime.
Living Beyond Breast Cancer – the goal of LBBC is to empower all women affected by breast cancer to live as long as possible with the best quality of life.
If you find yourself tempted to buy something you don’t really need – just because it’s pink and it’s October – why not send your $5 (or whatever amount) directly to the organization of your choice instead? That way it’s tax deductible, and you know for sure that all the money is going to the charity.
Help us find a cure for cancer. Help us make pink just another color. Help us take back October.
The second anniversary of my cancer diagnosis is quickly approaching. Of course it has me thinking. A lot. Not all the thoughts are happy thoughts, but that just comes with the territory.
But some of those thoughts are happy thoughts. Warm, fuzzy, happy thoughts. Like the girls I met because I have cancer.
These are women I would have been proud to count among my friends even before diagnosis, but I can’t imagine a scenario in which I would have met any of them outside of cancer.
This weekend a group of us traveled to New Orleans to a conference for young women with breast cancer. We learned about treatment protocols, late effects of treatment, nutrition, dealing with the impact of cancer treatment in the bedroom, and myriad other topics, and we got to spend time with other women whose lives have been similarly impacted.
Good times, good music, good food, good company…
I think the people with whom we surround ourselves have a huge influence on our happiness. Sure, we all have those people around whom we have to tiptoe and walk on eggshells, but we can dilute their influence with so many more amazing people, people who lift us up and love us for who we really are. I’m so blessed to have such amazing friends – that they understand what I’m going through with cancer because they’ve been there too just makes it that much better.
I’m a very lucky woman.
Of course I still worry about how many years I have left, but even more important than the number of trips you make around the sun is your traveling companions along the way.
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