On the radio

On Air

.This is the story of how I became an on air radio personality.

Ok, it’s not. I’m not.

It’s not even about me.

This is a story about Debbie Cantwell, and the non-profit organization she started on her kitchen table, all by herself, to help young women with breast cancer, like me.

This is the story of the Pink Daisy Project, and a generous donation from Bonneville Seattle and the Seattle Seahawks.

The Pink Daisy Project provides care and comfort to young women with breast cancer, by means of grocery cards, gas cards, drug store cards, and housecleaning services.

My little girl and I were invited to accompany Debbie, her mother, and Andrea to the presentation of the honor.

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And a check that will allow the Pink Daisy Project to help quite a few more young women.

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And then, the Seattle Seahawks presented Debbie with the 12th Man flag, signed by all the players.

Yes, of course, my daughter photobombed that shot.

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Then we went into the booth, where Debbie told the story of starting the Pink Daisy Project as a way to pay it forward after receiving help from friends and family members during her own battle with breast cancer.

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And she told us about her own Grandma Daisy, in whose memory this organization is named. Grandma Daisy taught Debbie, and the rest of us by extension, how to live and give back, even while battling breast cancer.

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Andrea spoke eloquently about her two bouts with breast cancer on different coasts of the country, and the difference between one where she was surrounded by family, and the other where she was more isolated. The Pink Daisy Project was there for her when her family was far away.

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And then I got a turn at the mic. Look out Seattle.

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Actually, because the experience is still so fresh for me, it’s still quite raw. I still get choked up. My voice warbles at certain points. I have to take a moment…

Deep breath…

And my story comes out.

Pink Daisy Project Radio Interview

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Thank you to the Seahawks and Bonneville for your generous donation to the Pink Daisy Project, and the help it will provide for young women across the country facing this terrifying diagnosis. Thank you, also, for broadcasting the story of Debbie Cantwell, and how her work is so integral to the recovery of women like Andrea and me.

And thank you Debbie, for being there for me, and everyone else.

Pink Daisy Project on Facebook

Pink Daisy Project on Twitter

You can learn more about my cancer story here:

my cancer story | Judy Schwartz Haley

 

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It isn’t easy being pink

It isn’t easy being pink

It’s that time of year when the world is washed in pink, and people prance around in their favorite tongue-in-cheek, boob-aware apparel. But how much awareness does all this bring to the realities of breast cancer, and how much does this just turn our attention to boobs?

Don’t get me wrong, I have nothing against boobs. I am pro-boob. I was quite attached to mine, till one tried to kill me. Boobs are awesome, an entertaining conversation topic, they bounce, they feed babies, they’re happy, fun playthings. Breast cancer is the Debbie Downer in the room.

There’s nothing quite like a breast cancer survivor telling the reality of her story to ruin all the fun of a cute little breast cancer “awareness” meme. I wish breast cancer was fun. I wish it was cute. I wish buying pink shoelaces would save a life. But breast cancer isn’t cute. It’s ugly. It’s deadly. It doesn’t care if you have a good attitude, or wear pink.

But I can’t wish the pink away, not until we find a better way to fund finding a cure. Unfortunately, not only do we have to endure pink every year, but every year breast cancer survivors go out and parade ourselves around to raise money for breast cancer organizations we believe in. Like it or not, the reality is that many good organizations funding research and programs that help women with breast cancer survive depend on October, on the Breast Cancer Awareness Month, the make the majority of their budget for the upcoming year. And yes, the results of that funding has lead to research that led to treatments that beat back my cancer. And those fundraisers brought in money for breast cancer support organizations that helped me survive my treatments. These fundraisers do make a difference when the money goes to the right place.

So as much as we hate it, we put on the pink and we paste on the smile, because these programs helped get us through it, and now we’re paying it forward so those programs can help someone else. BUT, we’re very careful who we support.

Not everything pink forwards money on to organizations that are seeking the cure, or supporting women with breast cancer. There are so many devious programs out there making money hand over fist selling pink items. Some paint an item pink even though it’s a known carcinogen. Some send no money at all. some just bilk the well-meaning of extra cash. They send $1 to a breast cancer org? Sure, but they bumped the price from $5 to $10 before they painted it pink. That little bit of pink is making them an extra $4 a pop, and you’re buying, not because you need it, but because it’s pink. Sometimes it’s more effective to make a direct donation (also tax-deductable) rather than purchasing something just because it’s pink in October.

Yes, awareness is important. Yes, its the once annual reminder to do the self-exam that we should be doing every month. But we also need to spread awareness that young women, even young girls, can get breast cancer. And men, too. And we can’t stop at awareness.

Unfortunately, there are a lot of amazing women who are dying – and they’ve got all kinds of awareness. Awareness is not enough. We need a cure.

You can learn more about my cancer story here:

my cancer story | Judy Schwartz Haley

 

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Who in this room

Who in this room

I went straight to the bookstore after I got the “I’m sorry it’s cancer” phone call; surely amongst all the wisdom coded into letters and words, pressed to paper, and bound to books, would be some little snippet that would tell me how to move forward.

 

Since that day I’ve read a lot of books about living with cancer, but when Katherine Malmo placed the slender, uncorrected galley of “Who in This Room” in my hands, I knew I was in possession of something different.

Katherine’s book did not tell me how to move forward. But it was the first I’ve read that really connected with me on how it feels to have cancer.

That’s not to say the book is touchy-feely, in fact, it’s quite the opposite. One of my favorite quotes from the book shows her trepidation at joining a cancer support group: “You are afraid someone will try to hold your hand or leap from behind the ficus to hug you.” That pretty much sums up the way I felt the first time I walked into a support group meeting with the Young Survival Coalition.

I’m a little embarrassed to admit that I’ve had this book for well over a month, and I’ve been struggling with how to write this review.  I want to tell you that reading this book is like going through the process of diagnosis, treatment, grieving, and moving on – but then who would want to read a book described like that?

And I do want you to read this book. I want my friends to read it. I want my family to read it. Because even though this is Kate’s story, it is my story, too. And the story of all my friends who have looked cancer in the eye, and stared down death… even if only for a little while.

This is not a sad book. This is not a book that is just about cancer, although that obviously drives the story line. This is a story about getting up every day and living. And this is a book that ends at the start of her brand new life.

The launch party is on Sunday, October 2, 2pm, at Elliott Bay Books.

Katherine also writes the blog Hysterical Mommy Network.

You can learn more about my cancer story here:

my cancer story | Judy Schwartz Haley

 

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Turnagain Pass

Turnagain Pass is the highest point on the road between Anchorage and Soldotna, Alaska

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As of yet unscathed by corporate interests

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I love getting pictures of my little girl out in the wilderness

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she looks so fragile, buffeted by the wind

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of course, there’s the obligatory “Little House on the Prairie” shot

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complete with falling down scene

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but seriously, isn’t this gorgeous?

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