“People give you 3 months to mourn, and a year to have cancer, then they expect you to get back to normal.” I don’t know where I heard this quote first, but I’ve experienced the truth of the statement both in terms of mourning and cancer recovery.
It’s not that I’m faced with the reality of that quote on a daily basis, but it does remind me that while the lingering effects of my cancer still impact every single day of my life, many around me have moved on; my cancer is old news and in their minds, overplayed. I understand this perspective; I’ve been there myself. I know people whom I’ve avoided because every conversation, for years, involved detailed information about the wellbeing of their bladder or their gout. It does get old, and frankly, there are some details I just don’t need to know.
I do try to avoid being that person who unloads in that manner, but the fact that cancer is still a part of my present life is depressing to others as well. People want good news. Something better than “I was able to hold on to my pen long enough to write a whole page,” which is a big deal to me as a writer and avid journal keeper, but not so meaningful to everyone else. I don’t talk about those things anymore. When people ask how I’m doing, I just say “awesome” and leave it at that.
This is where a group like the Young Survival Coalition, and a retreat like Harmony Hill, are so critical to the wellbeing of a cancer survivor like me. It’s not just a retreat away from the stresses of everyday life, it’s a coming together with other women with similar experiences and battle scars. A three day weekend where we can compare notes, treatments, onging issues, what works for me, what doesn’t, and how we’re coping with all of it is not just healing, it’s normalizing – in a good way.
We’re not alone in this experience. We can share without the fear of being perceived as complaining. We can make fun of our condition and laugh at cancer in a way that often makes others uncomfortable. It’s summer camp crossed with a slumber party plus booze and minus the curfew. It’s yoga, meditation, labyrinth walking, beach combing, flower smelling, and lawn napping, followed by good food, good conversation, and tearing the best parts out of magazines for each of us to make something uniquely our own.
And it’s research. I’m looking forward to another surgery in the next few months. This one will involve 12 hours under the knife – that’s a long time – plus six weeks of recovery. It’s not something to take lightly. But I spent a weekend with 23 other cancer survivors, most of whom have already endured this surgery. I got better information on what to expect and how to prepare from these women who already went through it than from the doctor who has perfomed this procedure hundreds of times. And that’s to be expected. As much as these doctors know about performing this procedure, they haven’t experienced it.
I’m so thankful I have this group of survivors in my life. That we got to get away together, away from all the other stresses and demands of life for a couple days seems like a miracle. I know it took a lot of work to pull it together, but it was so worth it. I love you girls.
WW Linkup
Every week I host a photo linkup where we share posts featuring a photo. It started out being called Wordless Wednesday, but… Bloggers? Wordless? Then we started calling it Wordy Wednesday. Now we just abreviate to WW, and you pick for yourself whether or not to get wordy.
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This is so cool, I am glad you have such a wonderful network of support!
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Wow, looks like a perfect day and great way to spend time with friends:)
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I’m so glad you have such great people to surround yourself with
Looks like a great time!
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Thank you for sharing your story, I hope that more people can connect and learn from it, you are truly an inspiration
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Stay strong… I don’t believe there’s a time period for mourning or talking about the bad hiccups in life but I’m glad you found this supportive group.
Ai @ Sakura Haruka
Join in: Wordless Wednesday Linky Party
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That looks like an amazing retreat! I am glad you have found the support you need in the other ladies there!
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What a beautiful post. That retreat sounds amazing.
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You nailed it, girl. Love you! xxoo
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Looks like a wonderful place to relax and heal. Thanks for sharing that!
And thanks for the w/w hop!
Carolyn
Cookin’ for my Captain
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First of all, you guys are my heroes. What an absolutely beautiful post full of beautiful photos and such an inspiration. Thank you so much for sharing yourself.
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It is so important to have a support system like this. My dad had colon cancer when I was in college. I thank God everyday that he is in remission, but I always remember that I could have lost him and still could. You are a strong and amazing woman. I am so glad there is a place that you can go and feel safe to express your feelings, fears, hopes and concerns with others who are going through this battle with you.
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That looks like such a beautiful place of respite! I’m glad there are ladies you can share this journey with!
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Wow, your pictures really put perspective to this disease…seeing so many actual faces and knowing they’ve suffered with this diagnosis just as you have. I think it’s really sad that you feel like you need to filter how you’re feeling in any way. I mean, I get it…but I wish you didn’t feel like that. I’m so glad you have this support system who REALLY gets it. Thanks for sharing!
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That is so true! My husband has been in remission about a year and half, and it’s almost like he never had cancer (twice). He has so many issues from the chemo like the neuropathy and some heart/respiratory issues. His response to “how are you?” now is “so blessed it hurts.” haha (He does truly feel blessed regardless!) That’s so wonderful you got to have a little retreat! I’ll be praying for your upcoming surgery!
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sending you prayers.I hope everything goes well.
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Thanks for letting us know where you are and how you are “feeling”. So inspirational! And my prayers are with you.
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Beautiful! I hope you are feeling well and sending good thoughts your way!
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It’s so lovely that you have a group of women who have all been through the same experiences. It seems to be one of those things that nobody but someone whose been through it as well could fully understand.
Sending prayers your way!
Paula
lifeasweknowitbypaula.blogspot.com
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I must say there cannot be a more of an eye opener than to hear the stories of a cancer survivor,it has to be one the hardest challenges of life, and I admire you for the courage it must take everyday. Im glad you have this lovely group of women to be in touch with. I am new to your blog and following. Stay well for you and all your friends! Thank you for letting me be apart of the linky!!Have a great day!
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That sounded like a wonder retreat experience. I’m so glad that there are places and groups for cancer survivors. The bonding is so important. Some of my friends are cancer survivors as well, and I’ll share this with them.
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I totally understand what you are saying. While I never had cancer we lost our home and everything we owned in a fire several years back. While our life has recovered (we’ve rebuilt, bought new stuff) we’ll never get back what we lost and it has changed who we are. The cancer has changed who you are and you will always be a different person as it was a major part of your life.
Just because others no longer see it that way it doesn’t make it anyless life changing. I’m glad you found a wonderful group of women who always understand.
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I understand what you are saying. I just had this conversation with my step-mom while she was visiting last week. She is a survivor & she struggles with continuing to go to the support groups. She wants to be there for others but at the same time she wants to mentally move on for herself. In her mind she already focused all that time on it while it was consuming her days. Now that it’s not, she really wants to think about other things. But she feels she still needs to be there for others the way she had all the support when she needed it. I think it’s so personal how each person goes through their experience with it.
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My cousin is a 3 time breast cancer survivor and because of her (and many friends too) I turned NanaHood.com pink and it’s staying that way until there is a cure! I also do my best to raise awareness and funds for research. Your post is great. I’m going to give it a shout out on my Facebook page “NanaHood and the Nana Blogs” Stop by and friend me!
Teresa
PS Saying a prayer for you and your upcoming surgery!
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Thank you for visiting Wordless Wednesday at http://acts17verse28.blogspot.com/. I appreciate you stopping by and sharing your photo this week! I hope to see you again soon.
Have a great week,
NCSue
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Stunning shots. Your photos are so clear. Happy WW!!!
Brenda
Bouncing on Words
Life Less Ordinary
From my Points of View
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Beautiful authentic powerful writing and photography. Thank you for opening your heart on this one: )
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[...] (young women with breast cancer) for a retreat at the Harmony Hill Retreat Center. It’s a slumber party for grownups, but even more important, for a moment, we’re in a place and group where life with cancer is [...]