How did you tell your kids about the cancer diagnosis?
Stage by stage: chemo: “I have cancer in my breast and need to take medicine to make the cancer go away. The medicine is called chemo.” “I’ll go to the doctor a lot and might get tired. You’ll still go to school everyday. We’ll have dinner together every night….” surgery: “My doctor is going to take the cancer away in a surgery. When I come home, I’ll be sore and have boo-boos.” We practiced ways we could hug and snuggle that wouldn’t involve my chest – hand hugs, leg hugs, finger hugs. radiation: “I have to go to radiation every day. Radiation is a lot like having an x-ray. Remember when you had an x-ray after….”
How did your kids respond?
My kids were young enough that they didn’t associate cancer with death. They took it in stride and asked many questions along the way. We answered them all honestly. Sometimes they complained that I didn’t always go to swim class with them or other things that they were used to. Sometimes they worried about me, tried to take care of me by getting blankets or food for me. Mostly, they just went about their normal routines.
I think that surgery was the hardest for them. At diagnosis, I had just stopped nursing my 2 year old. He was still quite attached to my breasts. When I showed the kids my scars, he said “no more babies can drink from there anymore. I don’t like it!” They have gotten used to my flat chest and scars now. My oldest even asked why all the mannequins at Victoria’s Secret have breasts. “Not all ladies have breasts!”
What are some things you did that worked really well for your family with regards to dealing with the cancer, and treatment, while raising children?
honesty. I think my kids would have been more scared if they sensed things were different but didn’t know why. We also kept their daycare providers in the loop. We told them the exact language we were using to describe what was happening to me so they could use it too.
Is there anything you wish you’d done differently?
In terms of the kids? No.
How did the impact of cancer change as time passed, and your children grew? Did it change?
My kids still talk about it some. They play “cancer.” One kid pretends to have cancer while the other pretends to be a friend bringing over food. They take care of each other and say things like, “I’m sorry you have cancer. Would you like a leg hug?” Occasionally, something dramatic happens. My oldest recently had a nightmare about a witch plucking out all of my eyebrows and eyelashes. Clearly, it has had an impact. We just keep talking about it.
Do you have concerns about the long term impact of your cancer on your children?
Yes. Long term, I worry about a recurrence, about dying, about leaving my husband with 2 boys to raise on his own. I hope though, that this was just another experience among many in their childhoods. It will, no doubt, impact them. I don’t want it to dominate them though.
What advice would you give to other moms who are diagnosed with cancer?
Tell your kids, talk about it, don’t hide it. Secrecy causes more fear.
What concerns or fears troubled you the most?
that my biological son will get cancer
How did you deal with those fears?
deep breaths, reality checks
Did you decide to add more children to your family after your diagnosis? How did cancer figure into your decision?
We were already fostering our oldest at diagnosis. We have since adopted him. The process was a little more difficult because of cancer.
What did you do to take care of you? How did you splurge on yourself?
regular spa visits, acupuncture, many dates with friends and hubby for movies or tea, parties
Were you able to get help from friends and family members while you were going through treatment?
Yes. I practically demanded it. The day I was diagnosed I emailed about 100 people. I told them what was happening and that I would need them. My friends then set up committees and divided duties into categories: food, childcare, chemo buddies/medical appts, housekeeping. We used Lots of Helping Hands to keep everything organized. When I needed something, I just contacted the key person for the appropriate category and it materialized.
Was it difficult to ask for help? Do you have any suggestions around the topic of asking for help?
No. I knew that if I didn’t ask for help all of the burden would fall on my husband and mother.
Did you have an online resource that helped you through this experience?
Treatment Plan: Chemo, surgery (single mast) and radiation
Current Status: No evidence of disease
How did you tell your kids about the cancer diagnosis?
She was too young
How did your kids respond?
Too young
What are some things you did that worked really well for your family with regards to dealing with the cancer, and treatment, while raising children?
Allowing our community to help in any way they were willing and able. I also had to let go of a lot of my parenting ideals and live in survival mode. An example is letting my child watch tv younger and more often than I’d planned.
Is there anything you wish you’d done differently?
Not really
How did the impact of cancer change as time passed, and your children grew? Did it change?
Gratefully my daughter was so young the impact of cancer was minimal. The only thing I noticed was once treatment was over I had to rebuild my relationship a bit as she was used to spending more time with other caretakers.
Do you have concerns about the long term impact of your cancer on your children?
Only in my fear of recurrence.
What advice would you give to other moms who are diagnosed with cancer?
Ask for and receive help. We are all super moms but we don’t have to be supermom
What concerns or fears troubled you the most?
Death, not being there to raise them.
How did you deal with those fears?
Counseling and antidepressants
Have those fears and concerns changed over time?
They’ve lessened some
What was your darkest moment?
After surgery I really struggled and ultimately decided to go on antidepressants when I was crying every day and not feeling relief
What was your best moment?
When my diagnosis anniversary passed by and I didn’t notice until a week or so later. I felt to some extent I had moved on from cancer
Did you decide to add more children to your family after your diagnosis? How did cancer figure into your decision? Do you have suggestions for other women considering a post- cancer treatment pregnancy, surrogacy, or adoption?
I underwent fertility preservation prior to treatment to ensure we could continue our family post cancer. Then I accidentally ended up pregnant two and a half months after finishing treatment. Since I was hormone negative my doctors weren’t concerned about the timing even though ideally they had wanted me to wait two years. My advice is you need to live your life despite the cancer. Do what makes you happy, because the truth is you never know- you could beat cancer and die in a car accident.
What did you do to take care of you? How did you splurge on yourself?
As finances allowed I splurged on alternative treatments such as massage, acupuncture and chiropractors. I also made sure to do things that brought me pleasure such as pedicures and singing in annual performances.
Were you able to get help from friends and family members while you were going through treatment?
I have had the privilege of experiencing the depth and breadth of love and support my community has to offer because of my cancer
Was it difficult to ask for help? Do you have any suggestions around the topic of asking for help?
I struggled asking for and receiving help because it felt somehow like I was less than. If help is offered- take it. If someone says “what can I do?” Be honest even if it is cleaning your house or cooking a meal. The website lotsa helping hands was immensely helpful in managing the help also. I recommend asking someone close to help you manage it.
Did you have an online resource that helped you through this experience?
Young survival coalition and lotsa helping hands were my two primary online resources
Did cancer/treatment impact your relationship with your spouse/partner?
Yes though I’m not fully sure how yet. We are still recovering
Do you have any relationship advice for young moms dealing with cancer?
Take a deep breath, you can get through this
What is something you wish your friends and family members understood about your cancer and its impact on your life? What would you tell the friends and family members of other mom’s diagnosed with cancer? What would you want them to know about what she’s about to go through, and how best they can support her?
Cancer is a medical diagnosis, not an identity. It colors who you are just as any major experience would, be it pregnancy, pets, kids, diabetes, etc. However, it does not define you or your future.
For loved ones, give offers of help, but be specific. Patients don’t have the capacity to figure out what would be helpful most of the time. If you plan to do something in honor of the person, ask first if they are comfortable with that. I had a family member walk in my honor twice and make a big deal about it and want me there. I felt like a prize pig on display and it felt awful.
Were there any cancer-related activities or events in which you participated that you think were especially helpful to you or members of your family?
I was connected with one other woman who was a young mother going through treatment at my center. It was so helpful to have her to talk to. Counseling was also very very helpful.
Are there any resources that you recommend?
Young survival coalition
Lotsa helping hands
Do you have a blog or website where you share your stories about parenting while battling cancer?
Www.ourgauthierfamily.blogspot.com
What are some solutions you found to practical problems of combining cancer treatment with raising young children?
Ask for help- neighbors, friends, family. You can’t do it alone. If all you can manage is a movie marathon and take out food, that is ok. It is a temporary situation and will not do permanent damage. Talk to your doctors about your unique needs in caring for your child during treatment and how to adapt accordingly. Sometimes snuggling in bed with a book or a movie is all they need when you can’t pick them up.
Type of Cancer: Breast cancer – Stage IIIC triple negative breast cancer
Stage at Diagnosis: Stage IIIC
Treatment Plan: double mastectomy, 16 rounds of chemo 1 year of avastin
and 25 radiation treatments.
Current Status: Currently NED
How did you tell your kids about the cancer diagnosis?
We talked about the surgery to remove the sick breasts we talked about the medications and how they would cause. me to lose my hair and make me tired and not feel good. We had several books.
How did your kids respond?
Both girls were 3 years old and they did well we had a lot of support.
What are some things you did that worked really well for your family with regards to dealing with the cancer, and treatment, while raising children?
accept help when offered and ask for help when you need it,
Is there anything you wish you’d done differently?
I wish I had been well enough to work through treatment; the financial struggles were awful and still are. I should have asked for help sooner. People want to help and need to know what they can do.
How did the impact of cancer change as time passed, and your children grew? Did it change?
I think some of the effects are just starting to show. The girls worry more than they should have to. They do not really remember how sick I was. Just that I was bald.
Do you have concerns about the long term impact of your cancer on your children?
I worry that as they get older the realities of cancer and the risk of losing ones life will worry them. They were to young to understand that cancer could kill.
What advice would you give to other moms who are diagnosed with cancer?
Be as honest as you can with your children. They will know something is wrong. If you talk to them they will be less fearful. I think the unknown is more frightening than the truth.
What concerns or fears troubled you the most?
The fear of not being here to raise my little girls. I was blessed by adoption and I was terrified I would not be alive to see my babies go to kindergarten. They are now 1st and 2 graders.
How did you deal with those fears?
I strengthened my faith and did everything in my power to get healthy.
Have those fears and concerns changed over time?
I still worry that the cancer will come back. I just take it one day at a time.
What was your darkest moment?
getting the pathology back after my mastectomy.
What was your best moment?
the last day of active treatment
Did you decide to add more children to your family after your diagnosis? How did cancer figure into your decision?
I would love another child
What did you do to take care of you? How did you splurge on yourself?
I rested when I needed to and spent time with family and friends
Were you able to get help from friends and family members while you were going through treatment?
yes. I was lucky
Was it difficult to ask for help? Do you have any suggestions around the topic of asking for help?
It was difficult and still is. But I have found that many want to help and do not know how to offer. They are often grateful to be able to do something for you.
Did you have an online resource that helped you through this experience?
Young Survival Coalition
Did cancer/treatment impact your relationship with your spouse/partner?
Yes very negatively. In the long run we will be getting a divorce
What is something you wish your friends and family members understood about your cancer and its impact on your life? What would you tell the friends and family members of other mom’s diagnosed with cancer? What would you want them to know about what she’s about to go through, and how best they can support her?
That cancer does not end when treatment ends; it forever changes you.
Were there any cancer-related activities or events in which you participated that you think were especially helpful to you or members of your family
What are some solutions you found to practical problems of combining cancer treatment with raising young children?
I was lucky my parents live close (5 minutes) so they kept my girls the night before treatment and the night after. They also kept them for the 4-6 week stretch after my mastectomy so I would not lift them. I was close enough to see them anytime and was able to let my body heal.
CoffeeJitters is an affiliate to a number of sites and services. I do not endorse products I don't love. I may receive compensation if you purchase items from links on this website.
