Why Mommy: remembering Susan Niebur

Why Mommy: remembering Susan Niebur

In the cold, dark, fear of 3 a.m., when the cancer patient is most alone, I found ToddlerPlanet, a blog written by cancer fighting princess warrior, awesome mommy, and astrophysicist, Susan Niebur (also known as @whymommy).Why Mommy Susan Niebur

Days after my diagnosis, before I learned to reign in my imagination and to view Dr.Google for what it is, I found Susan’s blog. I read for hours: post after post, page after page. It seemed she was speaking directly to me, addressing my personal concerns about life, death, love, cancer, and most important to me at that moment, the well being of my child.  No sensationalism, just an honest look at life and parenting as impacted by cancer.

It would be difficult and frustrating, and at times, extremely painful, she seemed to say, but my days would still be full of love and joy, and I can still be an awesome mom, and my child can still be happy. I read those pages through tears; I was so relieved and hopeful. In the two years since then, we formed an internet friendship, tweeting and commenting on each other’s blog posts. The internet has made possible friendships between people who have never met.

Who will never meet.

Today I read her blog again through tears. Susan passed away today. She touched so many lives, her husband and little boys, her friends and family, the science community, the blogging community, the cancer and health advocacy community… and me, a girl at a computer Seattle, whose life was blessed by knowing her, even though we never met.

Is it just me, or does the moon seem to be a bit bigger and brighter tonight? I’m going to think of it as Susan’s moon.

Thank you, Susan, for the love and hope and strength you shared with all of us. Godspeed.

.

You can learn more about my cancer story here:

my cancer story | Judy Schwartz Haley

 

Let’s Connect

. . . .  .  . . . .
Follow on Bloglovin

Get Hitched Give Hope

Get Hitched Give Hope

What happens when you take a few good friends

get hitched give hope

Add some bedazzled furnishings

get hitched give hope

A little finery, and a little wine

get hitched give hope

And a few cameras?

get hitched give hope

Well, for starters, you end up with some fun pictures…

GH130-XL
GH129-XL

But more importantly, this event raised money for some pretty awesome organizations.

Get Hitched Give Hope brings together wedding related vendors from around the region, allowing the wedding party to meet the vendors, bid on wedding products and services, and plan their weddings while raising money for a great cause.

Brilliant, really.

And Swanky.

Food, wine, flowers, rhinestones, and feathers…

get hitched give hope

Vendors were there to show off the best of what they have to offer

get hitched give hope

And the Young Survival Coalition (an organization which has been of immense help to me in my cancer battle) was one of the beneficiaries, along with The Dream Foundation, which grants wishes to adults in the last year of their battle with life threatening diseases.

Such an amazing event. And thanks to all these events in October, we’ve got a good jump on hitting our budget for next year.  But I’ve got to admit, I’m thankful that October is over; I’m exhausted, and ready for a two week nap.

Also, I think I’m going to try to get one of those photo booths for all my events in the future. That was fun!

Recalled

Recalled

I can’t tell you how many times I’ve seen posts or tweets about breastfeeding over the past year that were not just touting the proven benefits of breast feeding, but taking a pointed, judgy stance on the issue. Statements about breastfeeding related facts might be buried in the article, but the hooks? the one-liners? they’re just polarizing rhetoric. They don’t come right out and state that you are a bad mom if you don’t breastfeed, but the wording draws the reader right to that conclusion. Some of the posts and tweets try to get funny with the issue, but they come across with the same message. They probably don’t even have a clue how their message is coming across.

There was another one today; this is an old one that makes it’s rounds every 4 months or so… “True Story: I don’t have to worry about toxins in breastmilk. And there’s never been a recall on my boobs

My boobs were recalled while I was breastfeeding. And you can bet I lost a lot of sleep over how many cancer cells my baby ingested from breastfeeding before I knew I had cancer.

034

Dairy Free Fake Boob

Don’t get me wrong. I am completely in favor of breastfeeding. I believe it is the best source of nutrition and immunity support available to a baby. But there are as many valid reasons for not breastfeeding as there are in favor.

There’s no way I could list them all here – there are too many stories out there, and no way I can know them all. Breast cancer stopped me. How about adoptive mothers? Sometimes the breasts just don’t work correctly, they’re not able to produce. Have you ever wondered why the role of wet-nurse was recognized in cultures all throughout history?  The world is full of incorrect ideas about AIDS and how it is spread. We stupidly avoid handshakes and hugs, while we overlook the fact that breastmilk is a proven means of spreading HIV. What would you do if you were a breast feeding mother, and found out you might have been exposed to blood borne pathogens at work? Would you stop breast feeding? It has happened.

Breastfeeding in public? I did it for 11 months. Not one incident. I did make sure that I wasn’t flashing around body parts that I wouldn’t flash around if there wasn’t a baby attached. No one was cruel to me about breast feeding in public. I’ve heard it happens, and that’s really too bad. Any awkwardness I experienced was on my own part, trying to figure out how to get the baby attached with limited visibility, etc… It wasn’t about anyone else. No, the comments came after I was no longer able to breastfeed.

If you’re a new mom, you do what’s right for you and your baby. That’s your business, nobody else’s. If breastfeeding is right for you and your baby – do it!  If it’s not, don’t.

Getting used to all of the people (even strangers) who suddenly thought my body and my baby were their business was the biggest adjustment for me through pregnancy, and motherhood.  Just draw a bubble around yourself, and imagine all the comments and criticisms just bouncing off that bubble.  You see, no one is really an expert. Parenting is on the job training, and the skills required are different for each child. That lady who just came over and said she raised 13 kids? She’s not an expert, either. Not an expert on your baby, anyway.

Love your baby. Wake up every morning, and try again. Everything is going to be ok.

coffeejitters border pink